Design and coordinate
multi-institute studies directed at addressing the goals of the consortium. Set
up national and international patient registries and tumor banks. Organize
and establish referral networks to facilitate patient access to centers of expertise
and participation in clinical research protocols. Organize national and
international symposia, workshops, and meetings on pheochromocytoma. Establish
and maintain connections with related organizations, societies, patient support
groups, and funding agencies to regularly communicate new advances and activities
in pheochromocytoma research. Educate health care professionals about the
latest advances in genetics, diagnosis, localization, and treatment of pheochromocytoma;
Recruit and train new investigators to the field. |